Palliative Care Comics: Designing a Person-Centered Patient Education Tool
Palliative care can improve quality of life in patients facing life-threatening illnesses by addressing their physical, emotional, spiritual, and practical needs. Research has shown that palliative care initiated early in the disease trajectory improves patients’ mood, quality of life, and even survival. Nevertheless, timely referral and willingness to initiate palliative care are hindered by stigma and the misconception that palliative care is for patients who have exhausted treatment options. Well-designed comics may be useful for addressing complex, stigmatized topics, because they are unintimidating, easy to consume, and relatable to readers. Unsurprisingly, educational comics can teach more effectively than text or verbal instruction. Since palliative care is valued by patients for being a person-centered and patient-led experience, comics may be uniquely suited to educate about this topic by embedding information in the context of an individual patient journey. The comic, currently a work-in-progress, will include a didactic narrative about palliative care and a situational narrative describing the patient experience. Feedback from palliative care patients during the development process will inform visual and narrative design of the comic.
License agreement and author copyright
Access to the full text of JBC articles is free and unrestricted on jbiocommunication.org. Authors are required to assign one of two types of licenses when a manuscript is accepted for publication. Under the terms of that agreement, authors retain copyright to their text and figures, but grant the JBC a perpetual license to publish the manuscript. The JBC offers authors a choice in publishing and licensing of their article:
- Exclusive License to Publish: Articles are freely available to the public to read through JBC online platforms, but this traditional license does not grant the public any reuse or derivatives. Permissions must be obtained from the author for any third party use.
- Open Access License: Articles are freely available to the public to read AND also to reuse without permission or fees as defined by a Creative Commons license.
For open access licensed articles, permitted third party (re)use is defined by either a Creative Commons user license: Creative Commons Attribution-NonCommercial-NoDerivatives (abbreviated: CC BY-NC-ND), or by a Creative Commons user license: Creative Commons Attribution (CC BY). This reuse is for non-commercial purposes, and it lets others distribute and copy the article, and include in a collective work (such as an anthology), as long as they credit the author(s) and provided they do not alter or modify the article.
JBC’s policies are compatible with all major funders open access and self-archiving mandates. Authors at their discretion, or in compliance with a funder-mandated open access policy, may grant to the general public the nonexclusive right to copy, distribute, or display the manuscript subject to the terms of the Creative Commons license.