Feedback-guided Development for Patient Education Animation: HIV Transmission via Breastfeeding
This thesis project uses animation to communicate the risk of HIV transmission via breastfeeding to mothers living with HIV in Canada. Current guidelines do not recommend breastfeeding for HIV+ mothers because there is always some level of risk. Knowledge of mother-to-child transmission is poor, and the cultural pressure to breastfeed has complex implications. It was essential that the science of transmission risk be conveyed in a clear and culturally sensitive manner, to allow women to make appropriate, informed decisions about whether or not to breastfeed. To accomplish this, we adopted a user-testing approach. Throughout development, the script, animatic, and character designs were presented for feedback to members of the target audience, healthcare providers, and representatives from Canadian HIV organizations in an iterative design process. At each round of feedback, the script, animatic, and visual assets were revised, and sent for further comment. Ongoing collaboration with the target audience helped us develop an animation with a wide diversity of characters, culturally sensitive metaphors, and nuanced descriptions of risk, in response to feedback that detailed desires about representation and identified how concepts were being misunderstood. User-testing approaches are necessary when creating patient education animations. Population needs, background, and context have a dramatic impact on patient understanding, and cannot be understood properly without user testing and direct feedback. Doing so helps prevent insensitive concepts and easily misinterpreted information, and thus is key to effective patient education animation.
License agreement and author copyright
Access to the full text of JBC articles is free and unrestricted on jbiocommunication.org. Authors are required to assign one of two types of licenses when a manuscript is accepted for publication. Under the terms of that agreement, authors retain copyright to their text and figures, but grant the JBC a perpetual license to publish the manuscript. The JBC offers authors a choice in publishing and licensing of their article:
- Exclusive License to Publish: Articles are freely available to the public to read through JBC online platforms, but this traditional license does not grant the public any reuse or derivatives. Permissions must be obtained from the author for any third party use.
- Open Access License: Articles are freely available to the public to read AND also to reuse without permission or fees as defined by a Creative Commons license.
For open access licensed articles, permitted third party (re)use is defined by either a Creative Commons user license: Creative Commons Attribution-NonCommercial-NoDerivatives (abbreviated: CC BY-NC-ND), or by a Creative Commons user license: Creative Commons Attribution (CC BY). This reuse is for non-commercial purposes, and it lets others distribute and copy the article, and include in a collective work (such as an anthology), as long as they credit the author(s) and provided they do not alter or modify the article.
JBC’s policies are compatible with all major funders open access and self-archiving mandates. Authors at their discretion, or in compliance with a funder-mandated open access policy, may grant to the general public the nonexclusive right to copy, distribute, or display the manuscript subject to the terms of the Creative Commons license.